“We are not easy to help. Nor are we easy to be around. Nobody with a serious illness is easy to be around. Although not obviously physically disabled, we struggle to get things done. Our energy levels are dangerously low. Sometimes, we find it hard to talk. We get angry and frustrated. We fall into despair. We cry, for no apparent reason. Sometimes we find it difficult to eat, or to sleep. Often, we have to go to bed in the afternoon or all day.So do most people with a serious illness. We are no different.”